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Image of Rare Diseases in the Age of Health 2.0

Electronic Resource

Rare Diseases in the Age of Health 2.0

Bali, Rajeev K. - Personal Name; Bos, Lodewijk - Personal Name; Gibbons, Michael Christopher - Personal Name; Ibell, Simon - Personal Name;

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This text focuses on various factors associated with orphan diseases and the influence and role of health information technologies. Orphan diseases have not been adopted by the pharmaceutical industry because they provide little financial incentive to treat or prevent it. It is estimated that 6,000-7,000 orphan diseases exist today; as medical knowledge continues to expand, this number is likely to become much greater. The book highlights the opportunities and challenges in this increasingly important area. The book explores new avenues which are opened by information technologies and Health 2.0, and highlights also economic opportunities of orphan disease medicine. The editors of this new book have international experience and competencies in the key areas of patient empowerment, healthcare and clinical knowledge management, healthcare inequalities and disparities, rare diseases and patient advocacy.


Availability
Inventory Code Barcode Call Number Location Status
1408000746EB0003472610.28 RarCentral Library (Database Springer E-Book)Available
Detail Information
Series Title
Communications in Medical and Care Compunetics
Call Number
610.28 Rar
Publisher
Berlin Heidelberg : Springer Berlin, Heidelberg., 2013
Collation
xxxiii, 292p.: Ill.
Language
English
ISBN/ISSN
978-3-642-38643-5
Classification
610.28
Content Type
Ebook
Media Type
-
Carrier Type
online resource
Edition
1
Subject(s)
Rare diseases
Specific Detail Info
-
Statement of Responsibility
RTS
Other version/related

No other version available

File Attachment
  • Rare Diseases in the Age of Health 2.0
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